【“哥哥，我要活下去”】
【父母离异】【17岁小妹妹2年不见天日】
1 share = 救人一命
姓名 ：CARMEN E JIA WEN
I/c ：980316-10-7768
年龄 ：17
职业 ：学生（2年前患癌被逼停学接受治疗）
病历 ： 霍奇金淋巴癌（化疗了2年，试了所有药，试了活细移植）
：淋巴癌扩散至肺癌（已痊愈）
：淋巴癌扩散至胃（目前对所有药物排斥)
家庭 ：E ENG HUAT（父亲 - OKU持有者）
募捐数额：RM257，400 （药物 - Brentuximab）
：RM 10，000 （政府病房1天RM 25）
当您看见一位患了2年霍奇金淋巴癌而且从来没痊愈过的小妹妹告诉你“哥哥，我要活下去”你的眼泪还能忍住不流吗？今天我啊文的眼泪当场流了下来！！！我希望看了这个post的人都能协助我最少捐RM10给我们。RM10可能让您饱吃一餐，可是您的RM10能让这位小妹妹继续活下去。希望每一位看到post的人都为这位小妹妹share出去。（一定要share）
大家好，一直以来我都会帮患者写下他们的可怜故事。而且每一次都只能上传一位患者。可是今天我想用我自己的身份和立刻上传这个贴为这位小妹妹呼吁大家一起协助我救活这位小妹妹。
今天的我真的很感动，很伤心。为什么呢？因为我看见了一位17岁的小妹妹用着很开心的笑容对着我说“哥哥，我要活下去”。可是我知道当时的她是在痛苦的。就在这一瞬间我回答“放心，你一定能的”。眼泪已经在眼角摇摇欲坠了。
这位小妹妹从小就父母离异，而且父亲也是OKU卡持有者。小妹妹2年前已经停学而长留在政府医院医病。在这2年里他的淋巴癌扩散到了肺和胃，但她没有放弃自己。她很努力的把所有化疗的药物尝试完，可是这种努力根本没有人想要。除了试药以外，他也尝试到了什么是活细胞移植，以他的经历我只能说“妹妹，你很棒”。但是很可惜的，所有的治疗方式根本对这位小妹妹起不了作用。为什么那么可爱那么努力的小妹妹会有如此的遭遇！！！但是专科医生最后补充了一句话，如果让这位小妹妹用一种新药作为最新治疗的话，康复机率可以高达60%。
在专科医生的告知下，目前还有一种新药 (Brentuximab) 在马来西亚还没被政府纳用，所以如果患者需要这个药就要自己付钱。但是大家认为最新最好的药会便宜吗?当然不便宜！！！目前有医生纸证明这个药所需的花费。当我看到我停顿了一会。RM257,400！没错，就是需要RM257,400！！政府医院专科开的信，患癌小妹妹需要付RM257，400来买让他继续活下去的药，怎样付？！而且医生还说明已经帮这位小妹妹申请了津贴才有那么“便宜”。如果没有申请津贴的话需要超过RM300，000。为什么需要这个价钱呢？因为小妹妹需要9个疗程，每3个星期一个疗程，每个疗程需要用2支这个德国进口的药，每一支需要RM28,000。
今天我也不想写太多，因为信我的人不需我解释，不信我的人就算我怎样解释都没用。在此希望大家别看不开这RM10，因为您的RM10（大众的力量）能把这位小妹妹救活，也能让这位小妹妹活得更精彩。在此我答应大家。如果大家肯为这小妹妹出一份力，每次她用新药时我将会亲自到场为大家拍摄下这位勇敢的小妹妹的一面作为对大家的一个交代。
谢谢大家！！！
【I want to survive】
【Broken family - 17 years old girl suffering from Hodgkin’s Lymphoma for 2 years】
1 SHARE = Save 1 LIFE
Name:
Carmen E Jia Wen
I/C:
980316-10-7768
Age:
17 years old
Occupation:
Student (Diagnosed with Hodgkin’s Lymphoma cancer 2 years ago and was
forced to stop schooling.)
Medical
history: Refractory Hodgkin’s Lymphoma Stage 4 (undergoing treatment for
2 years, tried various chemotherapy regimen, underwent stem cell
transplant). Cancer cells already spread to the lungs and abdominal area.
Family
history: E Eng Huat (Father – OKU)
Donation
amount: RM257,400 【Treatment – medicine (Brentuximab)】
: RM10,000 (Ward charges: RM25/day in Ward)
When
you meet a patient diagnosed with Hodgkin’s Lymphoma cancer that has not
recover since the past 2 years and she tells you that "I want to survive”, what would you feel? Today I met this patient and I feel
very sad. I hope everyone who came across this post could at least donate
RM10 to help this little girl. RM10 might not mean much to you but it could
help this little girl to live for another 2 years. I hope everyone could share
this out. (MUST SHARE)
Dear all, every time I would share
story on behalf of the patients that I met and we will only share 1 story at a
time. But today, I would like to share a story of a Hodgkin’s Lymphoma patient
in my own view. Because she told me that “I
want to survive”. My reply to her is “You can do it”.
When
she was only 9 years old, her parents divorced,
leaving her with her father which is an OKU.
Carmen was stopped from schooling 2 years ago when she was diagnosed with Hodgkin’s Lymphoma. She was admitted in the hospital for the past 2 years. In this 2 years, her
cancer cells from the lymph node has spread
to the lungs and also abdominal. But she never gave up. In 2 years time, she bravely went through all sorts of
different chemotherapy regimens and
also stem cell transplant, but her
condition does not show any improvement.
On 8th of January, her hematologist informed her and family members
that there is an advance drug
(Brentuximab) which could help in her condition. The chance of recovery with this advance drug (Brentuximab) is up to 60%.
The hematologist informed that the
drug is an advance drug which is not listed under the Ministry of Health Blue
Book and therefore not subsidized by the
government. The Hematologist informed that the drug costs about RM257,400 and it is not provided in the
government hospital (with a letter of proof from the hematologist). The hospital has applied fund from government
for Carmen’s treatment and thus she need to pay RM257,400 for the drug. The
exact amount of the drug for the whole
course of treatment is over then RM300,000. Why
RM257,400? Carmen needs to undergo 9
cycles of treatment every 3 weekly, each cycles will need 2 vial of Brentuximab, and 2 vial costs RM28,000.
Hereby,
I hope that the public can generously
donate your RM10. With the power of the public, we can save the life of a
little girl. If we could achieve the fund amount to cater for her drug, I
hereby promise that during each time of her treatment, I will share her current
condition in our page as to let everyone know how well is the brave little girl
doing.
Thank
you.
MYR 34,976
